Cystic Fibrosis (CF) is one of the most common genetic (inherited) diseases in America. CF is the most frequent genetic disease in children. It is also one of the most serious. It mainly affects the lungs and the digestive systems in the body, causing breathing problems and problems digesting foods. It is a chronic disease that currently has no cure.

Glands in the body that usually produce thin, slippery secretions (like sweat, mucous, tears, saliva, or digestive juices) produce thick, sticky secretions. These thick, sticky secretions plug up the ducts (small tubes) that should carry the secretions either outside of the body or into a hollow organ such as the lungs or the intestines. This can affect vital

body functions such as breathing or digestion.

Girl Scouts with CF may cough frequently, tire easily, get out of breath quickly, and some may use oxygen. The girl may take numerous medications or use an antibiotic nebulizer to kill bacteria hiding in their lungs. CF does not present the same symptoms or level of severity in each person and other medical conditions may exist.

As a troop leader of a girl with CF, check with her parents about any physical limitations, medications, and areas of concern. When the troop is engaged in physically taxing activities, allow for frequent breaks and/or have less demanding alternative activities available so that the girl can continue to participate.

More in depth information concerning CF can be found from various sources including:
National Institute of Diabetes and Digestive and Kidney Diseases, www.niddk.nih.gov;
Cystic Fibrosis Foundation, www.cff.org; National Heart, Lung, Blood Institute www.nhlbi.nih.gov.

Focus on Ability-Serving Girls with Special Needs, available in the shop, is a GSUSA publication, which has information about Cystic Fibrosis and other health impairments.

*See Leadership Train In for Ability – Let’s Get Focused - a training designed to show leaders how to incorporate activities dealing with special needs into your troop program.